Hi all,
I have a 22 year old baby sister named Cynthia who was born with a rare condition named Crouzon Syndrome. Crouzon Syndrome is a hereditary condition diagnosed based on a pattern of cranial and facial malformations. The basic identifiable sign of Crouzon Syndrome, present also in many similar disorders, is premature fusion of the sutures. Facial symptoms include exophthalmos (small eye sockets), midface hypoplasia, and vertically compressed nasal passages (giving the nose a "beaked" appearance). Non-craniofacial symptoms are also sometimes present. (for more info, go to:
Crouzon Support at AboutFace USA - FAQ) and Hydrocephalus (for more info, go to:
Hydrocephalus Fact Sheet: National Institute of Neurological Disorders and Stroke (NINDS))
By the age of eighteen, she has undergone 18 surguries (so figure one surgery for each year of her life)
If you look at her you would be able to tell something wasn't right but not sure what. But to me she is beautiful! She is extremely intelligent - she will be a college junior this fall studying to be a social worker. She is extremely kind and sensitive.
When she was born I was ten years old and the oldest so I helped my mother raised her. So in all aspect sometimes I see her as my first daughter. To me, Cynthia is my best friend and sister also.
The reason for all this outpouring is because I got a call from our brother Sunday night (June 21st) that Cynthia had taken an overdose of medicine. They rushed her to RUMC where they intubated her and pumped her stomach with charcoal.
She spent two nights in intensive care and then she voluntarily commited herself to a pysch floor.
She is home now.
Her's what she told me:
She said that she can deal (handle) with all her medical problems and conditions. For example, her feet go out a little and they start to hurt after wearing shoes for some time. If she knows that at the end of the day she has someone to love her and respect her and be in a committed loving relationship with (which she doesn't have)!!!! She said without that, all her pain and suffering don't seem worth it!
She said that in today's society looks are highly regarded and because of that she doesn't stand a chance!
She also said that she wasn't trying to kill herself (she knows and believes she will go to hell) but instead has been taking pills to dulled the pain and help her go to sleep.
But after she took these pills, her heart started to burn and she knew something bad was going to happen so she told our brother!!
I love my baby sister Cynthia dearly. Can you please keep her in your thoughts and prayers!
One last favor, can you please send her a card (she loves getting mail like me and loves stickers)
PM me for her addy:
Thanks for taking the time and energy to read this!
Her's a pic of her (taken at my baby shower):
